Now that's parenting!
Little Tarly Poxton was diagnosed with a disorder that she will have to deal with for the rest of her life. Her skin disorder causes her to get bright red, horribly itchy patterns all over her body unless she treats her skin multiple times a day. Even then, she can flare up. The disorder is not just painful to her, but embarrassing and frustrating. She kept asking her mother why she had to be born with this skin, so her mom decided to put some of it on herself so that Tarly wouldn’t feel so bad about it.
A Mystery Disease
Tarly Poxton of South Yorkshire was born four weeks early, but seemed otherwise healthy. Then her parents were horrified to see blistered skin on her foot, and it slid right off. The newborn infant was immediately tested for eczema, but the results were negative.
The child with increasingly itchy, flaky skin saw a dozen dermatologists over three years, and one doctor finally gave her the diagnosis of Netherton Syndrome, a skin disorder that affects 1 in 200,000 people. Tarly’s mother, Kory, was relieved and scared, saying ,”I was surprised more than anything when I got the diagnosis and I didn’t really believe that we had that answer after all this time.”
Tarly suffers from irritated, itchy skin that blisters easily. Her skin often flakes up and turns a bright red color in a strange pattern.
Kory is keeping Tarly’s condition as under control as she possibly can. She bathes Tarly before applying special moisturizers to her six times a day. Tarly also can’t be exposed to much sunlight. Though she’s doing better, she still has breakdown moments. “When Tarly has a flare-up, she gets really upset and asks me ‘Why have I got to have this skin? Why have you not got it? Why has my sister Pearl not got it?'” explains Kory. It was heartbreaking to watch her daughter go through such anguish.
Standing in Solidarity
When Kory couldn’t take her poor daughter’s suffering any longer, she realized that she had to do something to make her feel that she wasn’t alone. She had a great idea to show her support, and contacted some experts in the field to help her out.
When everything was scheduled, she told Tarly, “Do you know what? Mummy can have your skin but it won’t be real.” Then Kory got her daughter’s skin tattooed on her.